What is this now??

Serendipity: Looking for a needle in the haystack and finding the farmer’s daughter!!!


This is how I can explain what happened next. While the doctor was going through the MRI scan, it showed a cyst on Yatish’s tongue. He thought it might be a lymphatic malformation and may have to be removed surgically. He referred us to the ENT department to get it further investigated. We were completely stumped, this was turning out to be murkier than we expected. Now we had no choice and had to go ahead and get this checked.

http://www.childrenshospital.org/az/Site1256/mainpageS1256P0.html

We had to meet Dr. Trevor McGill, Otolaryngologist (phew!!), who is a super specialist in this field. He did an endoscopy, wherein the endoscope, which has a long tube with a lens at one end and a video camera at the other end, is inserted through the mouth to basically figure out what is happening in there. We also had the opportunity to see the video of my son’s oral structure and it was quite unsettling to say the least, but the doctor seemed all excited.

http://children.photobooks.com/directory/profile.asp?dbase=main&setsize=5&last=mcgill&pict_id=9904140

http://www.betterhealth.vic.gov.au/bhcv2/bhcarticles.nsf/pages/Endoscopy?OpenDocument


He felt this was “possibly a foregut duplication cyst or a dermoid and not a lymphatic malformation”. For us the question was is that good or bad? We eventually learnt that the foregut duplication cyst was quite a rare occurrence and it was basically a normal tissue in an abnormal location and in Yatish’s case was quite benign and would not cause any problem to him and there was no surgical intervention needed to remove it. We heaved a sigh of relief. After all, this whole exercise came to nothing, except that we made Boston Children’s Hospital a little richer. Dr. McGill is a very enthusiastic person and he had such a nice way about kids, that I still remember Yatish going through all this without much fuss.

This thing out of our way, were suggested to meet the pulmonologist next to do a barium swallow test. As I had mentioned in my earlier post, Yatish had a problem of reflux and a stridor, which is a continuous wheezing kind of sound, occurring due to his underdeveloped laryngeal cartilages. The barium swallow test would help us to know, if the food was going in the right tract and not getting into his lungs. But everybody felt that he had no visible problems and as it was Christmas time and a holiday season, we could not fix an appointment and we just let it go.

http://draft.blogger.com/goog_794409343

Next we had a physical therapy assessment, but then since the hospital was closed for Christmas, we also took a break and headed to New York.