Wednesday, November 24, 2010

Going under the knife!!!!

Once Pushpa Bopaiah told us about Dr. Sharan, we read up all about him. He was writing a column in Times of India, and that is how I was familiar with his name and we decided to take an appointment with him and see how it would go.


http://www.deepaksharan.com/

http://www.recoup.in/

We met Dr. Sharan and he examined Yatish and went about quietly taking his pictures. He is a man of few words and goes about his work with a no nonsense attitude. Even to ask him an extra question seems like an intrusion in his work. So here I was, sitting in front of the doctor all confused and anxious in anticipation of what he would say and he was all cool and composed, calmly jotting down Yatish’s condition. He said that there was a contracture in his hip and we had to take an X-ray to confirm this. He also noted down the areas where surgery would be needed to release the spasticity. Once the X-ray results were out, it confirmed his diagnosis. Spasticity involving the hip muscles, mostly in the groin, can cause the hips to gradually come out of their sockets. This can be a painless process, but can result in a severe deformity of the entire hip joint and eventually cause a great deal of pain.



Before the whole thing could sink in, we had already decided on the surgery dates. Many a times, in these kinds of situations, we have to make decisions without really knowing the final outcome. Whatever improvement it brings and if it means a step forward, it is good enough. This is the only mindset you can have, especially when dealing with a disability like Yatish’s.

Within a month of meeting Dr.Sharan, we were in the hospital, waiting for Yatish’s turn for surgery. He was to undergo a surgery called SEMLARASS (Single Event Multi-level Lever Arm Restoration and Anti Spasticity Surgery). Two types of surgeries were to be performed on him, one was the soft tissue surgery to release his spasticity and the other was the osteotomy to correct the bone deformity which was developing in his hips.

http://www.recoup.in/jcms/index.php?option=com_content&task=view&id=109&Itemid=226

I had no experience to fall back on as nobody among my near and dear ones had undergone any major surgeries. It was quite unnerving and at the same time, there was hope and anticipation that, the surgery might help him, to get some motor control.

We were advised not to feed Yatish since midnight as the surgery was scheduled next morning and he was to be administered anaesthesia. The pre- surgery, surgery and post surgery lasted for about 4 hours and perhaps it was the longest 4 hours of my life. Once he was out of the OT, both his legs and his hand were covered in plaster. He almost weighed 30 kilos.

His legs and hands were to be plastered for 6 weeks and those 6 weeks tested me both mentally and physically to my limits. It was physically exhausting and emotionally draining experience. I had to find ways to work around his plastered body and also keep his spirits up, because for 6 weeks he had to sleep in one place and in one position and also bear the pain.

God! No child should ever undergo any kind of surgery! It is just not fair!!!





PS: Sorry I had to remove the previous surgery picture, because it seemed quite graphic...

7 comments:

Deeps said...

and here I was...weeping when my little baby's ear was pierced.

Unknown said...

Your blog is very touching and inspiring to many.
Karuna you have tried some many options/methods my strong recommendation is you try the Pranayam i.e Anulom Vilom because it is the only exercise in yoga which benefits the whole body. Its very smiple to do...you inhale and exhale oxygen...and after reading the sporting & charmful sprit of Yathish, I recommend you try this as well with Yathish. You can do a search of this over the net.
I remember some one telling me that after doing the Anulom vilom the child who had slow/abnormal brain growth in the womb was normal after the mother did this pranayam regularly. Intially the doctor had very clearly told the mother that child will not be normal after birth as his brain growth was not normal, but after doing this pranayam the child was absoultly fine.
I urge you try this as well !! All the best and may GOD bless you and your family.

Karuna said...

@Sonali, I agree totally with regards to benefits of Pranayam, but sadly in Yatish's case, it is very difficult for him to close his mouth and get the rythmic breathing pattern..but will keep at it, thanks for your kind words...

Unknown said...

Hi Karuna, I've been enjoying reading your blog. We live in London, our little boy has spastic diplegia and is 3 now. Like you, I've been researching and desperately trying different things to help him but it's so hard to watch the effects on his body of the CP as the months go by. I have been looking into Semlarass surgery in India recently and was wondering how Yatish is doing. I'm sure that he has been working very hard over the last few years, I'd love to hear if the surgery helped and what changes you have seen. He sounds like an amazing little boy. Stay strong, it's such a tough journey. Sending love from London, Dionne

Unknown said...

Hi Karuna, I've been enjoying reading your blog. We live in London, our little boy has spastic diplegia and is 3 now. Like you, I've been researching and desperately trying different things to help him but it's so hard to watch the effects on his body of the CP as the months go by. I have been looking into Semlarass surgery in India recently and was wondering how Yatish is doing. I'm sure that he has been working very hard over the last few years, I'd love to hear if the surgery helped and what changes you have seen. He sounds like an amazing little boy. Stay strong, it's such a tough journey. Sending love from London, Dionne

Unknown said...

Hi Karuna, I've been enjoying reading your blog. We live in London, our little boy has spastic diplegia and is 3 now. Like you, I've been researching and desperately trying different things to help him but it's so hard to watch the effects on his body of the CP as the months go by. I have been looking into Semlarass surgery in India recently and was wondering how Yatish is doing. I'm sure that he has been working very hard over the last few years, I'd love to hear if the surgery helped and what changes you have seen. He sounds like an amazing little boy. Stay strong, it's such a tough journey. Sending love from London, Dionne

Karuna said...

Hi Dionne, Can you send me a mail on khaveri@gmail.com